Počet záznamů: 1
Protecting genetic privacy in biobanking through data protection law
SYS 0183764 LBL 00000nam-a22^^^^^3i-4500 003 CZ-PrPKS 005 20220106130449.8 007 ta 008 210817s2021----xxk----f------001-0-eng-- 020 $a 978-0-19-289647-6 $q (vázáno) 040 $a ABA011 $b cze $e rda 084 $a 3606 084 $a 2841 084 $a 3236 084 $a 1236 100 1-
$7 par_us_auth*0073472 $a Hallinan, Dara $4 aut 245 10
$a Protecting genetic privacy in biobanking through data protection law / $c Dara Hallinan 264 -1
$a Oxford : $b Oxford University Press, $c 2021 300 $a xvi, 288 stran ; $c 25 cm 336 $a text $b txt $2 rdacontent 337 $a bez média $b n $2 rdamedia 338 $a svazek $b nc $2 rdacarrier 504 $a Obsahuje bibliografické odkazy, bibliografii a rejstřík 520 2-
$a "Biobanks are critical infrastructure for medical research but they are also the subject of considerable ethical and legal uncertainty. Given that biobanks process large quantities of genomic data, questions have emerged as to how genetic privacy should be protected. What types of genetic privacy rights and rights holders should be protected and to what extent? Since 25th May 2018 the General Data Protection Regulation (GDPR) has applied and now occupies a key position in the European legal framework for the regulation of biobanking. This book takes an in-depth look at the function, problems, and opportunities presented by European data protection law under the GDPR as a framework for the protection of genetic privacy in biobanking in Europe. Hallinan argues that the substantive framework presented by the GDPR already offers an admirable base-line level of protection for the range of genetic privacy rights engaged by biobanking. The book further argues that, whilst numerous problems with this standard of protection are indeed identifiable, the GDPR offers the flexibility to accommodate solutions to these problems, as well as the procedural mechanisms to realise these solutions." --Cover 650 07
$7 par_us_entry*0002403 $a genetika 650 07
$7 par_us_entry*0004826 $a lékařský výzkum 650 07
$7 par_us_entry*0006751 $a ochrana dat 650 07
$7 par_us_entry*0007104 $a osobní údaje 650 07
$7 par_us_entry*0006773 $a ochrana soukromí 650 07
$7 par_us_entry*0006209 $a nařízení Společenství
Počet záznamů: 1